Back in January, EFF called on attorneys general in Florida, Texas, Arkansas, and Missouri to investigate potential privacy violations and hold accountable crisis pregnancy centers (CPCs) that engage in deceptive practices. Since then, some of these centers have begun to change their websites, quietly removing misleading language and privacy claims; the Hawaii legislature is considering a bill calling on the attorney general to investigate CPCs in the state, and legislators in Georgia have introduced a slate of bills to tackle deceptive CPC practices.
But there is much more to do. Today, we’re expanding our call to attorneys general in Tennessee, Oklahoma, Nebraska, and North Carolina, urging them to investigate the centers in their states.
Many CPCs have been operating under a veil of misleading promises for years—suggesting that clients’ personal health data is protected under HIPAA, even though numerous reports suggest otherwise; that privacy policies are not followed consistently, and that clients' personal data may be shared across networks without appropriate consent. For example, in a case in Louisiana, we saw firsthand how a CPC inadvertently exposed personal data from multiple clients in a software training video. This kind of error not only violates individuals’ privacy but could also lead to emotional and psychological harm for individuals who trusted these centers with their sensitive information.
We list multiple examples from CPCs in each of the states that claim to comply with HIPAA in our letters to Attorneys General Hilgers, Jackson, Drummond, and Skrmetti. Those include:
- Gateway Women’s Care in North Carolina claims that “we hold your right to confidentiality with the utmost care and respect and comply with HIPAA privacy standards, which protect your personal and health information” in a blog post titled “Is My Visit Confidential?” Gateway Women’s Care received $56,514 in government grants in 2023.
- Assure Women’s Center in Nebraska stresses that it is “HIPAA compliant!” in a blog post that expressly urges people to visit them “before your doctor.”
As we’ve noted before, there are far too few protections for user privacy–including medical privacy—and individuals have little control over how their personal data is collected, stored, and used. Until Congress passes a comprehensive privacy law that includes a private right of action, state attorneys general must take proactive steps to protect their constituents from unfair or deceptive privacy practices.
It’s time for state and federal leaders to reassess how public funds are allocated to these centers. Our elected officials are responsible for ensuring that personal information, especially our sensitive medical data, is protected. After all, no one should have to choose between their healthcare and their privacy.
